Feedback – Down Syndrome Consultation Website

Consultation

Welcome to the first stage of our consultation following the passing of the Down Syndrome Act.

This is stage one of our three stage consultation, we want you to share your thoughts about each of the main areas.

After this stage, we will ask you for more information about the issues that are the most important to you.

The final stage will be to attend a workshop, online or in person, at which we will talk about the important issues. We will then include your ideas and thoughts in a report that we will include what people want in the Government’s guidance.

You can read more about the act and why we are doing this consultation here.

On the next page we will be asking about you, and for you to share with us what you think about health, then social care, housing, education and employment.

You can write as much or as little as you like, or leave areas that you don’t want to fill in.

Please click the next button to begin.

Your details
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Name*
First name or initial Last
Email*
Phone Number
Address
Address 1 Address 2 Town/City County
Postcode*
Age group*
- Under 13
- 13-17
- 18-24
- 25-34
- 35-44
- 45-54
- 55-64
- 65-74
- 75-84
- 85+
- Prefer not to say
Gender
- Male
- Female
- Prefer not to say
Relationship to someone/people with Down Syndrome**
If you are responding because someone you know/family member has Down Syndrome please let us know their age:
- Under 13
- 13-17
- 18-24
- 25-34
- 35-44
- 45-54
- 55-64
- 65-74
- 75-84
- 85+
- Prefer not to say
Hidden
If you are responding because someone you know/family member has Down Syndrome please let us know their age:
- Under 13
- 13-17
- 18-24
- 25-34
- 35-44
- 45-54
- 55-64
- 65-74
- 75-84
- 85+
- Prefer not to say
Privacy Statement

BECG is managing this online consultation on behalf of the National Down Syndrome Policy Group.

By filling-in this online form you are agreeing that BECG can hold and process your personal data in relation to this public consultation exercise.

BECG will only share your personal data with the project team companies for planning evaluation purposes only.

Your identifiable, personal data will not be used for any other purposes without your consent.

BECG and the project team will use your data to:
- Send you updates about the project (where you provide us with your contact details).
- Develop a report about this public consultation that will be submitted to the government. Your comments will be anonymous, and we will only identify you in these reports with your express permission.
- If you provide us with your contact details, we might also contact you to ask you more about the comments you’ve made.
BECG acts on behalf of the NDSPG to run public consultation activities.
Data Protection

We hold all personal data in accordance with the retained EU law version of the General Data Protection Regulation ((EU) 2016/679) (the “UK GDPR”), as it forms part of the law of England and Wales, Scotland, and Northern Ireland by virtue of section 3 of the European Union (Withdrawal) Act 2018, the Data Protection Act 2018, the Privacy and Electronic Communications Regulations 2003 as amended, and any successor legislation. Your personal data will not be transferred outside of the EU. You can see our full Privacy Statement, Data Protection Policy, Data Retention Policy and find out how to make a Subject Access Request at the following website address becg.com/dp or by contacting us on 01962 893 893 / dataprotection@becg.com.

National Health Service

Welcome to the first page for you to tell us what you think should be in the Government’s guidance for the care of people with Down Syndrome within the NHS. This doesn’t include social care, which will come next.

Please watch this video from Alison and Hazel sharing their experiences and views around health.
That's what Alison and Hazel would like in the guidance for the NHS – what would you like to be included? If you don’t have anything to write, please click next.

Social Care

Tell us what you think should be in the Government’s guidance for the social care for people with Down Syndrome.

Please watch this video from Sophie and Charlottle sharing their experiences and views around social care.
That's what Sophie and Charlottle would like in the guidance for social care – what would you like to be included? If you don’t have anything to write, please click next.

Housing

Tell us what you think should be in the Government’s guidance for housing for people with Down Syndrome.

Please watch this video from Sophie and Charlottle sharing their experiences and views around housing.
That's what Sophie and Charlottle would like in the guidance for housing – what would you like to be included? If you don’t have anything to write, please click next.

Education

Tell us what you think should be in the Government’s guidance for Education for people with Down Syndrome.

Please watch this video from Lizzie and Katie sharing their experiences and views around education.
That's what Lizzie and Katie would like in the guidance for Education – what would you like to be included? If you don’t have anything to write, please click next.

Employment

Tell us what you think should be in the Government’s guidance for Employment for people with Down Syndrome.

Please watch this video from Freddie sharing their experiences and views around employment.
That's what Freddie would like in the guidance for Employment – what would you like to be included? If you don’t have anything to write, please click next.

The Down Syndrome Act and our consultation
Please share information about any other areas you would like to be considered in the Guidance, and/or for the National Down Syndrome Policy Group to take to the All Party Parliamentary Group on Down Syndrome.
Thank you for completing this consultation. If you would like to receive further updates and potentially to participate in the second phase of the consultation, please provide your email details and/or telephone number below
Email
Telephone
Please press the submit button below to send us your views. We will be back in touch after the first stage of consultation is complete to let you know how you can continue to be involved.

Step 1 of 8

Your details

National Health Service

Social Care

Housing

Education

Employment